One step back

Its been a tough day so I won’t be long. Albie’s shunt is settling in well and his oxygen levels are looking really good which is great.  But, his bowel wall has been starved of oxygen and part of it has died. Poor Albie is in a bit of a miserable state as a result passing lots of blood but they hope it will regenerate with plenty of rest. So he is dosed up again on morphine, nil by mouth still and on five different antibiotics so it doesn’t turn nasty. Poor wee boy. He will be in Intensive Care for quite a while longer yet. We are inspired by Albie who continues to fight it all fiercely though -he has so much chutzpah this one!  Please continue to keep us in your thoughts and prayers


  1. Hi – Jon Kelso’s sister here. I am a mum and a nurse and just think you guys and your stunning little man are incredibly inspiring. He is an amazing gift and will teach you so much. I am following his progress avidly and have you all in my thoughts. Forget about Italy and have a fabulous time in Holland! xx

  2. We are with you all in thoughts and much love .I feel the strength and passion for life in you all, it is truly such a joy to know you all .xxxxxxxxxxxxxxxxxxx

  3. Sending you all lots of healing love……and always thinking of your little man, great pics of him on here….xx Amanda xx

  4. When I read one step back I felt like shouting “ENOUGH ALREADY” instead I did as requested and prayed some more including the following which Sarah’s Mum and I found particularly helpful during our rough times. Hope it helps!

    My life is but a weaving
    Between my Lord and me
    I may not choose the colours
    He knows what they should be
    For he can view the pattern
    Upon the upper side
    While I can see it only
    From this the under side

    Sometimes He weaves in sorrow
    Which seems so strange to me
    But I will trust His judgement
    And work on faithfully
    It’s He who fills the shuttles
    He knows just what is best
    So I shall weave in earnest
    And leave to Him the rest.

    Not until the loom is silent
    And the shuttles cease to fly
    Shall God unroll the canvas
    And explain the reason why
    The dark threads are as needful
    In the weaver’s skilful hand
    As threads of gold and silver
    In the pattern He has planned

    …. and then the phone goes and it is Marcus to say things are looking a bit better the morning

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