The big fat family challenge

So we are still awaiting our little guy putting on some beef. The shunt they placed in him is a little too big for him, which means that there is 2-3 times the amount of blood circulating his lungs than is circulating his body. This means his lungs are working hard oxygenating all that extra blood and so he doesn’t have much puff left for feeding.  And, because his lungs are working so hard, he needs about double the amount of calories a regular baby does. Its a bit of a catch 22 and as a result, poor Mr Wrigglesworth has been fading as he is so pooped:

He is being pumped full of milk and Calogen, so we hope that we will see him put on some weight soon. When he starts to get bigger, he will grow into his shunt, have more energy for feeding and he will

start flying ahead. In the meantime, our lil’ man, sleeps and sleeps and sleeps:

There is a really big positive of all of this though.  As the shunt is a bit big for him now, they think it might last him till he his around 10 kgs instead of the original estimated 6-8kgs. That is great news for him because the older he is the less complicated the open heart surgery, that he needs to have next, becomes. So that is very cool.

We just have to get through this skinny patch and we might just get a good year at home together before the open heart surgery stint. Its our own Big Fat Family Challenge and we certainly ain’t the Chawners.

4 comments

  1. It’s a shame that gorgeous boy can’t eat pies!

    Loving your updates – thank you. You guys are doing so well and you are always on our minds (even our extended whanau is thinking and praying – at times like this it is useful to have those with a closer relationship to god, whoever she might be, on side). As always we are sending so much aroha from Paekakariki – this time with extra padding.

    PS> Aneke can’t wait for her little buddy to return to the capital so she can show him some cool riding tricks the rocking horse. xxxx

  2. So Mr Wrigglesworth put on a whole 20g’s today I hear? Wooooohooo!! Nice work Albie. Keep it up and you’ll be able to come home and hang with all your Welly mates real soon. We miss you very much down here and send you lots of love all the time. While I hope you get through this skinny, sleepy stage soon you do look absolutely gorgeous when you’re sound asleep.
    xxx

  3. Oh, the little love, sorry just catching up on my Mr Wigglesworth posts, so posting a bit late. Hang in there you guys *hugs*.

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