So we are home. Its awesome. And terrifying. And great. And surreal. All at the same time.
Awesome – to come home to be greeted, not by the ramshackle house with the ramshackle path that we left behind – but a ramshackle house with a choice-as path! It seems in our absence from Wellington, stacks of our amazing friends and family chipped in funds and sweat and made the loveliest new access way to our whare. Its primo. As I was saying to Tama et al., it makes us feel so good to know that our new family has so many arms around us supporting us as we venture ahead with Albie and his heart. So thankyou to you all for making all the love we have so very apparent to us. Its so humbling, so, so humbling. Its hard to know how to thank you for being so gosh-darn-wonderful. I will get Tama to post some pics so you can see the exceptional man-work that took place.
Terrifying – to be responsible for Albie’s weight all our on lonesome. He is still having trouble feeding, so often needs a top-up down his nasal gastric tube but if you give him too much he vomits the whole lot, so its a bit of a balancing act. And on his first at-home weigh-in, he had lost weight which was a real clanger for our confidence. I just wish he would hurry up and grow into his shunt so that he can feed properly but the doctors reckon that is at least a kilo away. It feels so far away!