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May 8, 2011February 6, 2015 The Green Garden

Up the garden path

We used to have a shonky path to the house, and now we don’t. Its amaaaaaaaaaazing. Thanks to the stack of you who put in money and sweat to make it happen. Incredible, incredible.

Here are some photos of us on it this Mothers Day.

Love to the lot of you,

Sarah, Marcus and Albie

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Wellington

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3 comments

Louise Hannagan says:

May 8, 2011 at 4:26 am

Happy Mothers Day Sarah!! Welcome Home Albie and Nice path guys!!

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Thea says:

May 8, 2011 at 9:34 am

Wowsers, amazing path and what a nice surprise too, how lovely! Happy Mothers Day Sarah, hope it was great xx

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Rachael says:

May 8, 2011 at 11:17 am

Happy Mother’s Day gorgeous!!!

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All the advice we received pointed to the fact that Albie’s pulmonary conduit could be stented to reduce some gradient pressure. . But, when they got in there on Tuesday, much to our surprise, Albie’s conduit was still the original size it was when it was placed and didn’t need a stent at all. . So despite the extra load - Albie’s pulmonary gradient pressure is now 3.9m per second, whereas normal is around 1m per second, Albie’s heart is rocking it. . (Medical terms are clearly not my forte, but you get the jist.) . So we have a really tired heart kid and no obvious fix for it as they won’t entertain intervention below 4m per second. They suspect it could possibly be an electrical issue, so that will be investigated next. . This time, I’m trying not to be too certain or excited about anything. They say don’t count your chickens before they hatched and I totally did. I thought we were having one stent and then getting one energetic boy. But alas, neither hatched and it all feels rather dismal. . So it’s been a hard week and now we’re recalibrating. We all thought we were about to cross the finish line but just as we got there the finish line suddenly got moved - and we aren’t even entirely sure in what direction it got moved to. . This is such a whingy post. It’s also full of bad analogies about eggs and chicks and finish lines. Apologies on both counts but I trust you will understand the need for it all. . The photo is of Moley, Albie’s offsider, who was wheeled to theatre through the corridors with Albie. At the end of the day as Albie was going back to sleep, (this time voluntarily), he said “Mum, Moley and I really loved that bed ride.” . Starship is, in between all the tautly pulled heartstrings, a very beautiful place.

Pinning our collective hopes on a fragile cage of metal, which this morning gets placed into Albie’s heart. . So grateful for incredible medical teams, amazing technology and a free health system. So thankful too for our wonderful friends and family who carry us along in their arms and on their shoulders. . May today be bright.

I’ve been wide awake at 2:30am many times. But these days - without a baby, or a party, there is neither excuse or reason for such frivolous expenditure of the hours between midnight and dawn. But last night I was awake, my mind forfeiting my mantra of “radical acceptance” as it went for a wander across the catastrophes and through the night. We head north today to Starship, New Zealand’s children’s hospital. . Albie has been suffering the effects of severe pulmonary stenosis, as his whole pulmonary artery needs replacing, and it’s time to sort it out. . The plan for next week is to insert a pulmonary stent in to widen it and see how the pressure changes. It’s not a permanent fix, but it will hopefully give Albie some more time before he heads back to open heart surgery. . My blood cooled in the dark last night, readying myself to re-enter a building that holds far too many memories. A place where no plan has yet ever gone to plan, and the edge has been far too close. . But this morning dawned, and the light returned. And with my bagged eyes and jangling nerves I sat and witnessed my two boys excited about plane rides, and Ronald McDonald House and food on trays. . And, Albie, legitimately excited about getting his energy back. . And then our neighbours and dear friends arrived, with a basket of heartfelt goodies delivered to hold us with a supreme amount of love. So with dawn, and with light, and with love, we step forward. And my mantra of radical acceptance is back in place. This is. Everything is unfolding. And beauty is found absolutely everywhere.

Harvest basket of cocazelle zucchini, deka cucumber, peas, basil, lettuce, curly kale and many edible flowers. Salads can never have too many.

Chick Tetris is ON.

Six fast growing chicks trying their hardest to fit under their Mamma. Three in, three out.

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