See you later cheeky

So wee Albie gets his nasal gastric tube put back down today. While he has been feeding really well on his own, he is just burning through too many calories supporting his shonky circulation system to have any calories left over to grow bigger. And at four months yesterday, and just 4.31 kgs its becoming quite the issue.  The nurse explained it to me by saying that his blood is currently travelling on the windy, long road instead of the highway. The blood does get to the destination and get oxygenated, but it takes heaps more petrol, or calories, than it should do. And then Wrigglesworth runs on empty and so he isnt getting fatter. How I love a good analogy to make sense of things.

So he is going to get two calorie supplements after each feed down his tube to help him put on the beef. And the tube will probably stay down now till his open heart surgery.   We are gutted because with the NG tube comes a whole suite of medical paraphenalia – syringes, litmus paper, sterile water that remind us constantly that our wee boy is far from okay. But at the same time, we are sooooooo gunning for him to put on weight and whatever it takes is actually fine with us. It will be marvellous to see him start stacking on the pounds again.

So its a surrender to what needs to be and a temporary farewell to his sweet, empty face:

7 Comments Add yours

  1. Louise Hannagan says:

    Just showed this picture to Angus and he said “thats my wee friend Albie-he looks just like me when I was a baby!”

  2. Nicole says:

    And they say that the best part of an adventure is not the destination but the journey. Your journey certainly isn’t predictable but look at that gorgeous smile and those sweet cheeks. Go Albie! Put on the weight and keep up the optimistic fighter spirit. Can’t wait to catch up with you guys soon. xxxx

  3. Meg says:

    I agree, a very good analogy that makes definitely makes it clear! Dear wee Albie, he has the most amazing smile. Sending lots of love from other here and beefy thoughts too xxxx

  4. Syleena says:

    With or without a tube, that smile and those cheeks are GLORIOUS. gee you guys made a good looking kid! big snuggles to little Albie and babyman hugs from his bro Jack xxxx

  5. Amanda Taylor says:

    Oh I love that first photo, he is truly beautiful Sarah and sweet, soft cheeks with or without tube which will look even cuter chubby…..lots of love. xxx

  6. Sharon Kelso says:

    Hi Mr W, Sara and Marcus. I havent been in your site for a couple if weeks so what a big thrill I got today – 2 big thrills actually. first was to see that smiley little guy and read about how fat he is getting – second was to see him wearing the little vest that I made for him – all the thanks that I need. keep up your wonderful support and attitude , it is that that is getting you through this. in years to come when you are dealing with muddy feet, knees and clothes and trying to keep up with a big boy appetite I think you will look back on this time with amazement, i am positive that this will happen because I suspect i see a battle gleam in Albie’s eyes. lots of love, Sharon Kelso (Jonathon’s mum)

    1. Hi there Sharon
      Lovely to hear from you! Mr W just LOVES his woolly vest – its a total staple for him this winter, and fitting better and better as his belly expands. We are really chuffed and humbled by your knitting, its just lovely! We have a thankyou postcard here for you, but we haven’t quite got them sent! It will be winging its way shortly though I promise…. To be honest I can’t wait to get to that place of muddy feet, looking back at this time – that will be so very, very cool. xxxx

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