Weekend Update

So the heart challenge was completed shortly after I last posted.  This involved a surgeon, doctor and cardiologist pushing lots of buttons, speaking in code and rolling echocardiogram wands over Albie’s heart. At the end of it, the cardiologist told us to gather ’round so she could debrief us on the results.  There’s a lot to get across here, but I’ll try to put it so you as simply as I can.

The first thing to note – you might say ‘the bad news’ – is that Albie’s heart is still “severely dysfunctional.”  However, it is less “severely dysfunctional” than 3 days ago, which is a positive sign.  This was mirrored by the cardiologist when she told us that she was not discouraged with his progress.  She also relayed that children with severely dysfunctional hearts may still be able to function with the assistance of medication.

For now though, the staff want to give Albie more time to make some headway at his own rate.  As per my previous post, the plan is still to progressively draw him off life support, while progressively phasing in his own ticker.  Some more positive news is that the surgeon is chuffed with the results of Albie’s Rastelli operation.  Both he and the cardiologist told us all (independent from one another) that they were ‘cautiously optimistic’ about Albie’s ability to improve over the next period of time – but again, the signal is that this is likely to be weeks or months… not days.

The next milestone we are currently awaiting is likely to come on monday, so there is unlikely to be much in the way of change between now and then.  If I don’t post anything tomorrow, please take that as a sign that everything is “normal” here and that Albie is stable and safe as he has been since Wednesday afternoon.

I’ll leave you all with a personal moment if I may.  You can imagine that emotions are running fairly high around these parts, but you should all know that its not a constant state of gloom and sorrow.  There are moments of joy and laughter, there are millions of hugs and kisses, and there are moments of extreme hope and promise.  While holding Albie’s hand this morning – a pastime I have practiced for hours on end for the last few days – I was so overcome with hope when he squeezed back for a few brief moments.  In the haze of a mighty cocktail of medication, and despite his reliance on astoundingly sophisticated machinery, Albie continues to remind us that he’s fighting to come back to us.

23 Comments Add yours

  1. Lizy says:

    Yeah you are Albie!! You little champion, for every milestone you smash I promise to give you another juicy piece of goss about what your folks got up to before you were the apple of theirs eyes! XXX So much love

  2. Shelley says:

    Way to go Albie, you can do this! Slowly but surely, as they say.
    Thank you so much for the updates. Big squeezy hugs to all of you at Starship xxx

  3. Yvonne Mallon says:

    Continuing our flood of prayers and positive thoughts for Albie. One step at a time, one day at time, and positive improvements no matter how big or small at a time are still steps toward improvement…..whether it takes days or months…let’s just get him there!! Take care and sending our endless love, thoughts, positive vibes and prayers.

  4. dollydollface says:

    Miaow miaow purrrr purr. ❤ ❤

    1. dollydollface says:

      That was from Bootsy & Safi. They forgot to say. I know Albie speaks kitty but you know…

  5. Sarah et al says:

    Thanks for the updates jase. Can you please let Albie know that Scout just got a table with TWO chairs ready to share an alfresco summer tea party with him when he makes it back to the Wellington massive. Love.

  6. You little Hero…..even though I don’t know you personally….i’m so proud of you. Keep fighting the good fight! Jess x

  7. Helene says:

    Another great update, and so awesome that you got one of the special hand squeezes. We’re here for you Marcus and Sarah, with love and good wishes for Albie’s journey no matter how long it takes or what direction it may go in.

  8. Thanks for the update Jason, nice and clear you have explained it all well.
    Great to get confirmation that Albie is making progress even if it’s a little at a time. Will keep prayers going and glad you had that special moment today. Lots of love to you all Janice Mannex

  9. Peta Hislop says:

    Great to have the updates Jason. Albie and his family are constantly in our thoughts. The hand squeezing brings tears to our eyes, dear little boy. All the best to everyone from us, Peta and Doug

  10. Sharee Lowe says:

    Thanks for all the updates, it’s the first thing I check every time I look at the computer and he is on my mind all day. So pleased they have such a great support crew around to help ease the burden a little. Albie has won hearts around the world and we are all praying for him, cheering for him and sending love his way xx

  11. Julia says:

    Keep fighting Albie, we’re keeping you in our prayers and thoughts xxx

  12. Rebecca says:

    We’re so glad to hear he’s hanging in there, as are you all. Love and continued healing prayers.

  13. larahearn says:

    Awesome to hear he is making progress, our “Albie candle” has been burning for several days now and the kids are keen to hear how he is going. Kia kaha Albie, you are in our thoughts, Wade, Lara, Mila and Caleb Rollo xxx

  14. gemma says:

    Go get’em Albie, your in my heart and prayers Albie sarah and marcus, loads of love, big smiles and sparkles

  15. Thea says:

    Thank you for the updates. Come on Albie, you are strong little man. Thinking of you all the time and lots of positive thoughts coming your way. Thea xx

  16. stefenie says:

    Sweet Albie!! Been praying for all of you and for so much healing for Albie.

  17. Ana says:

    Oh that little hand! Keep holding on to it Jason and supporters. It is absolutely mighty what you all are doing. Thinking of you all, all the time. xxx

  18. Nicole LaRose says:

    Light and love surrounds you, Albie. Prayers abound.

  19. miguel garcia says:

    Albie, we love you! 😉 Keep it up. xxxxx

  20. Claire Pimenta says:

    Keep fighting Albie! Thinking of you all xxx

  21. Tansy says:

    Dear Sarah and Marcus, what an incredible, courageous, gorgeous wee fighter you have – I am thinking of you all constantly and sending so many prayers for your beautiful Albie. He is truly amazing. I feel for you so very much and hope more than anything that Albie keeps on improving. Much, much love, Tansy xoxoxo

  22. Miguel Garcia says:

    Señorito Albie! We are in the sun storing this beautiful energy and sending to you with love, faith and chorizos for your recovery! Slow and steady wins the race and you are our champion. Much love from the Garcia Clan. Xxxxxxxx

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